Redefining MommyhoodJourney of a mom whose son is overcoming hypotonia

I have been working very hard to do my daily positive affirmations. I made it a point to say a bunch to myself in the shower this morning. It’s amazing how much better it makes me feel and how wonderful my days end up being from saying them!

It’s a beautiful day out today, chilly, but warm in the sunshine. Luke and I had lunch, then went out in the backyard to play for a bit in his sandbox. He has been taking more and more independent steps this week. Monday at PT he took 5 all by himself! I wanted to try and get him to walk in the grass (with his shoes and DAFOs) since it’s an uneven surface. He was standing pretty close to our fence when he heard a dog bark. He thought it was the neighbor’s little dog, so he wanted to walk over to the fence to try and look through. He took a total of 21 small steps to get there!!! It took him a bit and he lost his balance once, but he didn’t fall and he kept going! I was so proud, and I could tell that he was very proud of himself too!!

I think a lot of Luke’s issue with walking now is confidence. Since he knows that he can take a few steps by himself, he seems to be building on that to get further. Next week he will be running (my positive affirmation for him)!!!:-)

My sister and her youngest daughter came to visit over the weekend. We spent the day walking around St. Augustine and being tourists. We were walking along George St. checking out the shops, when I overheard 2 moms chatting. They both had sons that were 15 months old. The one boy was walking along with his parents, while the other was in his stroller. I heard the mom with the boy in the stroller say “look, see that boy, that is what you are supposed to be doing”. The mom of the walking boy said that he started walking shortly after his 1st birthday. The non-walking boy mom said “well, he is just starting to walk, so he will get there”.

It’s amazing how much we moms compare our children to others. What is “normal” for one, may not be “normal” for another. I have definitely learned that children all do things in their own time. There sometimes isn’t an explanation for things. We would be so much better off if we could sit back and just enjoy these early years with our children and appreciate them for who they are. I know it’s hard not to worry and wonder. I still do it everyday!

We had a breakthrough yesterday during our in-home physical therapy. Luke has not been cooperating very well for the therapist, but she was playing with some of his blocks and he decided he wanted to play. He likes to take his toy tools and break apart his Mega Blocks. The PT had some of the blocks in her hand while Luke was standing. He would swing the toy tool (probably not the safest thing to do!) and break the blocks apart. She kept backing up and Luke eventually took 4 steps total!! He even fell forward, put his hands on the floor, then stood back up all by himself!! The therapist was so happy, but she didn’t dare cheer too loudly because she didn’t want to scare him and have him drop to the floor. Luke took a couple tiny steps 2 weeks ago at his other therapy, but these were true steps!!! Yay!!! I’m going to keep practicing with him using his blocks. I know once he feels confident with that, he will decide to take steps while doing other things:)

According to my mom, I was also a butt scooter like Luke. I never really crawled, but I started walking around 15 months, which is still considered late if you go by the book.

Our physical therapist mentioned one day that butt scooting is usually an indication that a person has low muscle tone. So, now I’m wondering if I maybe had it too, but not as bad as Luke. I have never been very athletic or had a lot of endurance. I managed to make it through basic training though:)

I’m just hopeful for Luke’s future. I hope that his hypotonia is something that he can overcome and eventually catch up to where he needs to be. It’s fine with me if he is never athletic, but I know this is something that would be more difficult for a boy to handle. He is already very smart, so I think he will be more studious than athletic anyway. Only time will tell us for sure.