Redefining MommyhoodJourney of a mom whose son is overcoming hypotonia

Well, Hubby went back to work today. He had about 2 weeks off, which was nice for all of us. Luke really enjoyed having Daddy around. Now it’s back to working long hours and long days for Luke and me.

We spent two nights at a local resort on the beach. It is apparently off-season because we practically had the whole place to ourselves. There were only a few people at the pool. It was nice to feel like we were far away, but only a short drive from home if we needed to make a quick escape.

Luke and I went to his new physical therapy center today so he could get fitted for his DAFOs (braces). They decided to go for the more aggressive, higher braces to help keep him from hyperextending his knees while he is standing. He did great while they did the mold/casting!! I told him that we are making him some special shoes. He loves shoes, so I thought this would help. I hope he does ok wearing them once we get them back in a couple weeks. Luckily, it’s getting a little cooler here, so he can wear pants over them. I’m anxious to get him in the braces so they can help with his positioning and he can get stronger. It is scary though to have to put your child in any kind of brace. Hopefully, he will get stronger and stronger and we can eventually phase the braces out. I know that kids sometimes have to wear them for many years though. We also get to buy some new shoes that will fit over the braces:) I will post some pics of Luke wearing them in a few weeks.

We had to say goodbye to our physical therapist today. This is her last week at that facility. We will be seeing a new PT, but her schedule is booked up until the first week of December. Ugh, another setback. So, now we are back to PT once a week with our EI therapist until we can get in with the new PT at the rehab facility. When will things get easier???? I’m hoping and praying that these braces will help Luke get stronger and he will be walking in the next few months. I’m going to need physical therapy if I have to carry him for much longer.

It’s official, Hubby is on vacation until the end of October:-) He wasn’t able to take any time off until now, so he has about 2 weeks worth to burn up.

We had originally planned on heading up to North Carolina to visit our old friends. We would love to see them and hang out, especially in the fall, but we decided to do a “staycation” instead. Between having to get new tires for the car, gas money, and boarding our cats, it was just going to cost way too much. We live in a state where most families come on vacation anyway!

I have many activities planned for us to do as a family. Luke and I will also be busy with the usual “chores” like therapy days and mommy & me. I’m debating whether or not I dare give hubby a “honey-do” list also. Since he works so many long hours and hasn’t been able to take much time off, there are tons of things around the house that have been put off for well over a year. I try to do as much as I can, but it isn’t always easy with a toddler chasing you around everywhere.

We are supposed to have cooler weather starting this weekend. I’m hoping it sticks around so we can do lots of things outdoors without sweating profusely.

I will update with details on all of our family adventures:)