Redefining MommyhoodJourney of a mom whose son is overcoming hypotonia

As I’ve mentioned on here before, Luke has pooping issues due to his hypotonia. He has been on Miralax for probably close to 8 or 9 months now. I started weaning him off of it about a month or so ago. I was down to only giving him one teaspoon a day and he was still pooping ok. I thought that maybe this would be the end of the Miralax and the end of the poop issues, but I was wrong.

The past couple of days, he has been withholding his poop again. I can tell by the way he puts his legs out straight and clenches to keep it from coming out. He had stopped doing that for quite some time. I’m not sure if he ate something that plugged him up, and he knows that it may hurt when it comes out, or if he’s just regressing for some other reason.

I’ve had to up his Miralax dosage once again. This process is so frustrating. There is no way I even want to attempt potty training until we get this issue cleared up (and hopefully he’ll be walking by then). I’m hoping that he will get “cleaned out” in the next day or two, then I can begin the weaning process all over again. Ugh!

Ok, here is one of the not-so-fun parts of mommyhood. Constipation and blowouts! Luke is chronically constipated because of the hypotonia. His hypotonia is mainly in his trunk and legs so constipation is a side effect.
He has been to a gastroenterologist and is on Miralax daily to try and combat the problem, but dosing is always a guessing game. He still gets constipated, so we up the dosage, then two days later……boom!!! A huge blowout!
The doctor seemed to think that he may also be withholding since his early bouts of constipation (pre-Miralax) were so traumatic.
I’m so excited to start potty training. Can you sense my sarcasm?